Category: Ella

The only photo I have of me as a baby with my mum, seen here with Lolly Jnr. (aka Me) – 1975

 

 

To be perfectly frank, I had deep personal issues with Mothers Day a long time before giving birth to my own firstborn in 2004. It’s something I’ve been practicing and trying to embrace in recent years (in my family’s own way) and now, I can do it with my child with free abandon. It’s taken years.

People have begun to share their first ever Mothers Day photos. And their first photos as new mothers.

So here is mine:

Me and my girl – Jan. 13th 2004

 

I had never seen anyone more exquisite and delicate before seeing Ellanor. She was wrapped in the feather-soft cloud of Somewhere Else. She never lost the magic of where we come from, in the In-between. She was born with it, and she died with it. But she showed it to me and forever impressed upon me the importance of relishing Life and embracing Death. It is all a part of all of us. We know this. I’m not afraid of it. I just wish it didn’t have to happen to so many of us before we’re ready! Impossible…

My next “brand new mother” photo captures a look on my face that is full of pain, confusion and terror. So I won’t show it. We weren’t sure what was happening to our little Lolly, only that we didn’t hear her cry and that she looked pasty grey upon delivery – worse than her premie sister, in fact. I’m not so sure I’m all too excited that Steve got the photo of my face. But it does tell a story.

So here’s a more pleasant one from a few hours later instead:

"Oh, it's YOU!" – 2006

I’m of the firm belief that mothers are not made from the act of giving birth. I was technically a mother at the point of giving birth to Ellanor. And yet, I know I was a mother before she made an appearance. I considered myself a “real” mother – in the eyes of society, that is – the moment she reached beyond the medically-termed point of “viability”. How cold and harsh; you’re a mother only once your baby (or babies) has passed the gestational age where they give you a birth certificate. That’s 20 weeks to you and me (in this country, at present). I didn’t need either of those photos to tell me I was already mother. I was born a mother. I came out nurturing, for Pete’s sake. Over the years, I’ve just learned to reserve it for the truly needy.

I ponder the animal kingdom quite a bit when I think about “mothers”. Look at how the sea turtle comes up to the beach, lays her eggs and then leaves them to the elements of the sun, the moon, the sea. She does her part and returns to the water to ensure her own chance at longevity, nature takes care of the rest. Instinctively, those little hatchlings know how to make it and where to head. Some will fall prey to hungry predators. Others will be too sick to survive. But each one of them knows how to get back to what will nurture them.

When I was in my years of striving for a child with Steve, I knew that I had the heart of a mother in me already. There were many years of healing to go through, to soothe my heart and gather my strength, and it has taken to the eve of the LGBB’s seventh birthday before I’ve been ready.

I was so confused when child bearing eluded us, for I knew in my depths that I was supposed to have children all around me. Even before we had Lolly, we discussed foster care. It was too hard. We shelved it. Losing Ella had muddied the waters too much. But I still wondered if my future was meant to involve children. Somehow.

The survival instinct is strong in me, thanks to a childhood that had to be survived more than enjoyed. The passion and determination to ensure a child feels heard and counted and loved… that is my utmost drive. I’ve been waiting patiently, often not even thinking about it for months on end, to feel strong enough to take on the task – knowing that when I give, I give my all. Even the passionate need to balance their approach; our history makes me a good candidate but I’ve had to put a lot of time into learning how to carefully cauterize my own wounds now that they have cleared so that they are not reopened (or hardened). The decade of practice and study into ways of self-nurturing and being in service to the All of this Earth led me to realise that what the world needs from me and Steve is not more of our own biological children. Anyway, I gave away that notion several years ago, saying goodbye to the fourteenth tiny life to leave my body in 2010.

Besides, there are so many other children the world needs, right now – for they are already here – it’s just that sometimes, the way each child’s unique story unfolds, the care and nurture falls away for many and varied reasons. Like the turtle returning to the water for its own survival.

There is so much hope, and such brave and exciting, beautiful potential in these young people.  They have to deal with things, huge things, that most of our children have no concept of. I am well familiar with the pull of the impossible on the heart and all the ways life seems to show no mercy.

We are ready to do this. I, personally, HAVE to do this. The papers are signed.

Do you see even the most seemingly insignificant things in your day as spiritually significant? I never did. Before “because”.

 

Before “Because if I take the chance to go out today instead of stay by her side, it could be the day she first opens her eyes”

Before “Because I will never see her face again, I must do this”

Before “Because if I stay in bed, I might just never get up today/again”

Before “Because this next pregnancy could be The One, it’s got to be worth the heartache and physical pain of each miscarriage to try”

Before “Because now I see past the belly and appreciate that All life is precious”

Before “Because if I don’t, I will miss out on every precious moment of her and she may just be the only one who stays here”

Before “Because I must find the balance between my desperate fears and letting her live her life”

Before “Because she will be fine just as she is, I can’t control her”

 

…there was less of me. Not more. I may have been happier. Life certainly felt uncomplicated, more carefree and far less cruel. The world was warmer. But I was also oblivious. Asleep. I was by no stretch of the imagination as well-rounded or complete. Did not fully consider mercy. Or worth. Or wealth. I was not as compassionate and far more judgemental. Perceived perfection has a lot to answer for.

“Anyone who wants to appear to be perfect is struggling with something, and usually something pretty major,” a good friend once told me, years ago. Well, I wouldn’t know about that. That sort of outward striving for perfection (whether it be image, body size, hair-do, home, car…) has eluded me, always. I’m happy to remain blissfully unaffected. And this far in to my journey, it’s like an entirely different language for me now.

I am full today. A life made richer through the longest enduring struggles I never would have wished upon myself. But if it’s true – and we all sign up to our lives (and the challenges and choices we make in that lifetime) in a contract before we become mortal – then I would say, by and large, I am satisfied with the choices I have made. Am making. And the contract I signed up for is by no means finished (I hope, anyway!), which is good news because I have a way to go yet before many of my attitudes and beliefs are reprogrammed. Still… it’s a start, as they say.

Free-will and choice.
Do you let moments pass you by without recognising their significance? As mundane as they at first appear? By choosing to seeing each moment in a day as spiritually significant (note this is nothing to do with religion, but spirituality… the spirit that is within everyone), we can actually spin the driest, most apparently insignificant “straw” into gold.

True story.

 

I remember taking this photo, us holding hands and me in tears at feeling the reality of her warm little hand in mine. This was… Before "Because she has survived. I don't need to document any more. She's here."

 

The day looks like any other.

I get up before the sun, pull on shorts and a tee, grab the dog’s lead, tie my laces and we’re away. Half an hour later, I check plants in the front garden. Check for new shoots on the baby gum we planted around Christmas time. Come inside, flick on the kettle and the radio.

After the school dash, I return home. Work a day. Pay some bills, hang some washing. Clean mouse shit out of the pantry from an unexpected visit – for when are rodents expected? Really? – and restack the shelf. Admire my handiwork with those Ikea shelving units I bought a few months back. Collect the LGBB from school again, take her to her after school sport. Come home, give her tea. Say goodnight to Dad via the phone, tuck her into bed and marvel at the skin on her forehead, all rosy-smelling from her bath.

I helped bring that skin to being. This flesh and blood. My own. My only. Her brow furrows. I forgot to read her the story of Little Ella, she reminds me. Ulp. Forgot or conveniently overlooked in the hopes you wouldn’t remember I had promised, I wanted to ask her. [It was the latter, by the way]. So I trudged up and got the story out, brought it back to her bedside and began reading.

Half way through, changing words and skipping some of the harder bits (for her) here and there, she sits up. “Where am I?” she asks. “I want to see my name in there.” I grapple with my maternal instinct that wants to tell her to give her sister a turn…. It’s impossible. I have to try and explain to this kid that sometimes, it’s right for us – her, me and her dad – to give Ellanor some of our conscious attention. Some brain time. A loving thought. A gesture like reading the story about her is one way we do this.

I’m not prepared for nights like these. There have been plenty in Lolly’s young life – but probably not as often as you’d imagine or expect – and they still grip me by the heart. Twist my insides. Keep me close to my fears over Lolly’s own mortality. It reminds me how close underneath the thin surface they lie. Lurking.

Today, I found out about a technique – kinesiology-linked, I believe? – that gets a body in touch with where it is holding its trauma. And helps the inhabitant of that body to actually release it. I’m thinking my current health issues are related to the ongoing post-traumatic stress I have. Most days, months, years, I can walk with it and I’ve learned to walk with it and chip away at it. Sometimes, I even pretend it doesn’t bother me that others in similar shoes to mine seem to be able to “move on” far more quickly and not bring these things to the surface.

Then I slap myself around a bit and remind myself this can’t possibly be true. They just choose to surface it in different (and likely more private than a blog) ways.

“I just want a sister.” My beautiful blonde-haired girl is sobbing deeply into her Scrapsy. His ear gets gently rubbed across her cheek, a comfort move she has done with her little soft dog since she was twelve months old. Thank God for that bit of fur and stuffing. Where would we all be without Scraps, I muse. And how the hell do I reply? So I tell her honestly.

“We tried, darlin’. And you were the only one who stayed. Out of all Mummy and Daddy’s babies, you are the only special one who stayed with us.” And now I’m dripping silent tears I hope she can’t see in the dark.

“I’m sorry, Mummy,” she reaches her hand out and cups my cheek, rubbing it slightly.

“What for?”

“You’re crying,” she says, crying herself. Damn. I assure her my tears are not for her to worry herself over. She goes to sleep knowing she is loved. Holding Scrapsy tight, a smile on her lips.

Each time I think I might turn away from this blog, that it is too morose, that I am not putting enough “fluff and light and funny stuff” here, I am pulled up sharply. By my reality, by my responsibility to actually help to balance out the rest of the privileged world’s crud and fluff and light (and gossip and obsession on material things and image and looks and gains and wins and competitions with each other). There are plenty of places for those things to be found and tapped into.

I’ve got to be real. This is my reality. I can’t say yes all the time, be all the things to all the people. The more peripheral, the more likely they’re the first not to be said yes to, their gaze not going to be met by my eyes. I can’t engage all the time. I’m in constant preparation for the energy it takes to sit by the side of my daughter who hurts in bursts.

I don’t begrudge any of this, regret anything. This is my daily grind. And it is – truly – beautiful.

 

Her tears fall as she looks at me, incredulous and bursting with enthusiasm.

“Of course I want to read your bloody book!” she says with a happy wail. So I post it to her, complete as it stands right now – a full two books’ worth, if truth be told – and hope for the best. Hope she will at least begin reading but tell myself not to expect much, either in terms of feedback or length of time it takes for her to get through it. I can only wonder if she will get time to read it over the months before her imminent death.

“Kirrily, is it too late to call you? I have some things to say about your delectable book,” she says down the phone. It’s 10:30pm. I sit and listen as she accurately pinpoints every little nuance, every detail I have subtlely woven in. She can see them. She has lifted all the tiny rocks in my story and waited patiently for the creature within to reveal itself. She gets it. She gets the pain and the anguish and the ever-present over-arch that comes with persistent infertility for the first time in her life, she says. She gets me. This time, we only talk until midnight. I thank the Universe silently, once again, that this is all happening during the summer holidays so that our family can roll with the late-night punches and routine interruptions a little more easily.

“It’s getting harder now. I came the closest to death yet yesterday.” She sounds weaker on the phone this time. Her emails are becoming confusing and confused. Yet still, she perseveres with my manuscript. I regret out loud that I sent it to her. She finds the strength to push back to me, “No, don’t you do that. Don’t say that. This is vital.”

I worry. I phone a mutual friend in despair. What if this is sucking the life force out of her? I ask. The wise old friend says to me, “Hey listen, the dying do this. They seek and find the loose ends. They tie up the big things that have claimed so much of them in life. You are helping her rest in peace.”

God. This is getting too much. Little did I know when I wrote the book that it would become something that held so much significance for someone so close to me. What is it? What is it she is searching for in those pages?

“I’ve finished your baby.” She tells me with great relief. She is sitting in her chair. I have come to visit for what turns out to be the final time. The read-through has taken her two painstaking weeks. We talk some more about the relevance of the book. We move on to other stuff. I help clean out her room a little more, I finger the books on her shelves. A lifetime of reading and research, some of them her own published works. This woman is a book. I grimace internally again at the loss to the world that will come in her death. I daren’t say any such thing out loud because I know she will counter me with a wave of her hand and a reminder that we are all teeny tiny grains of sand. But can’t we shape shift entire mountains together, as grains of sand? I want to ask. It’s impossible.

“Now you listen to me.” She grabs my hand with surprising force once she is propped back up in bed. Today has been very hard on all of us. Traumatic to witness. Ultimately, I am thankful I have been here in their home, her sole audience. I have just finished packing up the books and cards I have helped her to pick out. She has written to as many grandchildren as she can. She could hardly hold the pen to the surface by the third one. She is very tired now. So tired.

“You must get that book published. And listen…” I lean in closer. Because she’s making me! “You are an incredible writer. I love, love, love the way you write.” She fixes me with her steely blue sharp stare when I begin to shrug off her high praise. Coming from her, this is too much. I have viewed my stepmother as a great wordsmith for as long as I have known her, which is nigh on twenty-four years. Every letter she’s ever written me, every book, every work manual… meticulous in their pitch and prose. She made them so. She waggles my arm and stresses her point. “No. Now, stop that and get that look off your face. You are a writer. Know it. You simply are. I only wish I could have done more, I don’t think I have done my job…. Now get it published and don’t stop until you do. It will happen.”

She breaks her grip and waves casually to the paper bag containing my manuscript next to her on the bed. “Here it is back again, and you might find some other things in there as well that could be useful.”

We lock gazes. She’s not the same as she was a few days ago. Her thoughts are drifting, I can almost see it. Like vapours shifting to another realm, already she is heading there. In three short days, she will be gone.

When I get home late that evening after the three hour drive, I pull out the contents of the bag onto my kitchen bench. It has burned a hole in the passenger seat all the way and I have been itching to take a look inside. The manuscript. I flick through pages. Half-way through, I turn to my husband (still working hard at his computer) and muse, incredulous, “She’s edited the entire fecking thing. She’s amazing!” Sentences I have struggled with for several years have been flipped and corrected with her familiar hand. Little trips and quirks in my writing, cleaned up with pinpoint accuracy. I can hardly believe my eyes as I consider the super-human effort this must have taken her. She didn’t just read this for herself. She read this for the world. I get it now. I try to stop the feelings of guilt rushing up and gulp them back down. No, she wanted to do this. The book hasn’t taken the life out of her. It’s allowed her to die not wondering, I tell myself.

Alongside the manuscript is a notebook. I open it to discover it is one of her diaries. I see quickly that they contain entries right back to 2002, many of which hold conversations from her perspective that I had with her back then about “this little presence” I had begun to notice around me. I am floored. I am humbled into silence and feel the pounding in my chest. She has captured Ellanor too. She was holding her all along, right behind me. The deep significance of our first child to my stepmother, and the magnitude of this read-through, becomes painfully, beautifully, hopelessly clear.

A week after her funeral, I look out at my backyard. Under the cover of fast-falling darkness, the greens appear more rich, the leaves hold more secrets. I turn my gaze up to the clear dusk sky and see the bright, lone evening star. Like her piercing blue eyes on me, the star is holding me in its presence. I stare at it. It appears to be focusing on me just as intently.

Can lone stars achieve anything? Or are they destined to stand out for a little while before getting lost amongst the eventual light of billions of other stars around them?

I just don’t know. But I do know one thing now: I’d better bloody well try. Just as soon as I make those edits she’s marked….

 

Thank you, Sus

The reality is, one in four women will have (or has) experienced pregnancy or infant loss. Obviously, that statistic goes for male partners too.

Here’s another reality:

Dads in the NICU often look like this

Most of the time, you can’t hold your own baby in the NICU (neonatal intensive care unit). At best, Dad gets to open a little porthole on a humidicrib (or isolette, or whatever your hospital refers to them as) and chat to his fragile newborn about sweet nothings. Steve had to do this sparingly with Ellanor. She used to go nuts at the sound of his voice.
Side-note: medical caregivers (particularly trainee registrars) seem to get a bit antsy about family exciting the bebe’s too much. As if it’s not a good thing… it’s not energy-conserving, I suppose. I just thought it was marvellous, that she responded to him so differently, further proving how HUMAN and REAL she was!, compared to the way she cooed and relaxed when she heard me. It was almost as though she wanted to get up and get outta there right then, the way she practically levitated off the bed at the sound of her Dad’s voice.

Another touch of reality for you: This is the face of a man who has just heard the little miracle in his arms, who has his fingers and toes and half of his genes and made it all the way here just to meet him, has a life-threatening congenital heart condition.

Be very gentle with the glassy-eyed among us – you don't know what news they have just learned

 

Of course, mums look pretty similar. When they’re there more often, they probably get a better chance of a hold outside of the isolette. But not much more frequently. In four weeks, I held my daughter about the same number of times as I have fingers on one hand. Not much to last me a lifetime, is it?

"There'll be plenty of time for real cuddles," I continually consoled myself.

 

And where machines and tubes and needles rule the order of the day, mums have to step aside. A lot. Willingly, mostly. For without the intervention, the brief and rare cuddles would not even be a reality.

Recently, the memoir I have painstakingly tended as it has grown over all the months and years that my daughter has not, was called out for being “voyeuristic at best” and “like sitting in a psychoanalyst’s chair at worst”. I wondered, as I read the review from a gentleman in his latter years, whether he had ever known one of the 1 in 4. I bet he has known them. I gather he either doesn’t realise he has known them or he hasn’t been brave enough to stay with their story long enough to learn something new (perhaps even learn something about himself), otherwise he would have reconsidered his approach to me. I’ve long since grown enough within myself to ensure those sorts of opinions don’t hurt. Not so much as they might have once, anyway.

But I am mostly saddened to realise just how many people think that way. That there are people who hear/read a mother or father explaining their story about losing their child and think they are doing nothing more than treating the listener/reader as a counsellor.

The main reason I wrote the book is to give voice and validation to the people behind the statistics. It’s easier to shun numbers and overlook them. It’s much harder (obviously, like it was for that reader) to stand alongside a bereaved parent and say, “I don’t fully get it because it hasn’t happened to me, but I do understand that so many are like you – they have the same pain to overcome that you have known. Thank you for showing me.”

Have a heart. Before you click away from here, take a moment to remember:  Someone you know has, or will, experience the worst pain a parent could ever know. No matter how brief their grief, or how they traverse through it and come out the other side to their new sense of “normal”, please don’t be so quick to flick it away. If you are in the position of never having known this pain, don’t be so sure you know how you’d cope with it.

Compassion, and consideration that no one way is the only way through anything in this life, is so very important to remember.
Please comment responsibly when communicating with a loved one (or stranger!) about something you don’t fully understand.

Read more:

And because it’s Friday (and also because I haven’t done this in a while) I’m linking up with Grace for FYBF


Let’s Connect


Follow

Get every new post delivered to your Inbox

Join other followers